Family Caregivers' Burden, Patients' Resourcefulness, and Health-Related Quality of Life in Patients With Colorectal Cancer.

OBJECTIVES: To examine how family caregivers' burden and patients' resourcefulness influence each other and health-related quality of life (HRQOL) in patients with colorectal cancer. SAMPLE & SETTING: This study was conducted in an outpatient clinic at a medical center in Taichung, Taiwan. A total of 84 patient-caregiver dyads were recruited, and 43 patients had advanced-stage cancer. Patients and their caregivers signed consent forms individually. Patients were aged 29-77 years, and caregivers were aged 22-75 years. METHODS & VARIABLES: The theory of resourceful-ness and QOL guided this study. An F test and multiple regression analyses were conducted to examine the relationships among demographic characteristics, family caregivers' burden, patients' resourcefulness, and patients' HRQOL. RESULTS: Higher-resourcefulness patients tended to have caregivers with higher self-esteem and fewer health impacts. Caregivers with fewer impacts to health and finances and higher self-esteem were predictive of higher resourcefulness in patients. Higher patient resourcefulness, fewer caregiver disruptions to daily schedule and impacts to finances, and higher caregiver self-esteem were predictors of patients' HRQOL. IMPLICATIONS FOR NURSING: When developing and evaluating education programs about cognitive skills training for patients with cancer, nurses should take family caregivers' burden into consideration to support optimal patient outcomes and HRQOL.

Caring load and family caregivers' burden in China: the mediating effects of social support and social exclusion.

Objective: Caring for older adults with disabilities is a source of stress for family caregivers, and the lack of social support and the pressure of social exclusion might aggravate family caregiver burden. This study aimed to examine the association between caring load and family caregivers' burden, as well as the mediating effects of social support and social exclusion. Methods: Data used in this study was derived from the nationally representative database of the aged population in China, and 3,125 households with disabled old adults and their home-bound caregivers were eventually selected for this analysis. Regression methods and mediation analysis methods were employed in this study. Results: The results indicated that there was a significant positive association between caring load and the caregiver burden, and specifically, social support intensity (rather than social support breadth) and passive social exclusion (rather than active social exclusion) played partial mediating effects. Furthermore, the contributions of mediating effects of social support intensity and passive social exclusion were 13-15 and 27-29%, respectively, and the total contribution of mediating effects was about 35-38%. Conclusion: Family caregivers' burden should be paid more attention to in the large population with rapidly aging speed like China, and more guidance services as well as support should be provided to family caregivers. In addition, it is crucial to focus on the community's social support and social exclusion in public policy innovation.

Estratégias de enfrentamentos e sobrecarga dos familiares cuidadores de pacientes psiquiátricos: revisão de literatura / Coping and burden from family caregivers of psychiatric patients: literature review

A desinstitucionalização psiquiátrica resultou em maior responsabilidade dos familiares no cuidado informal dos pacientes, o que pode resultar em elevada sobrecarga para estes cuidadores. Essa sobrecarga pode ser diminuída com o uso de estratégias eficazes de enfrentamento, segundo o modelo teórico da sobrecarga. Foi realizada uma busca sistemática nos indexadores SciELO, LILACS, Pubmed, Web of Science e PsycINFO, sendo encontrados 36 estudos internacionais que avaliaram a relação entre coping e sobrecarga dos familiares cuidadores. Os resultados indicaram que os familiares utilizam uma diversidade de estratégias de enfrentamento, mas, em geral, elas não estão associadas a um menor grau de sobrecarga. As estratégias de evitação e de resignação estão claramente associadas a um maior grau de sobrecarga, devendo, portanto, ser evitadas. (AU)

Psychiatric deinstitutionalization has resulted in greater responsibility for family members in the informal care of patients, which may result in high degree of burden for these caregivers. Burden may be reduced by the utilization of effective coping strategies, according to the theoretical model of burden. A systematic search was conducted in SciELO, LILACS, Pubmed, Web of Science and PsycINFO databases, where were found 36 international studies evaluating the relationship between coping and burden of family caregivers. Results indicate that family members use several types of coping strategies, but these strategies in general are not associated with a lower degree of burden. Two strategies, avoidance and resignation, were clearly associated with a higher level of burden and should, therefore, be avoided. (AU)

Estratégias de enfrentamentos e sobrecarga dos familiares cuidadores de pacientes psiquiátricos: revisão de literatura / Coping and burden from family caregivers of psychiatric patients: literature review

A desinstitucionalização psiquiátrica resultou em maior responsabilidade dos familiares no cuidado informal dos pacientes, o que pode resultar em elevada sobrecarga para estes cuidadores. Essa sobrecarga pode ser diminuída com o uso de estratégias eficazes de enfrentamento, segundo o modelo teórico da sobrecarga. Foi realizada uma busca sistemática nos indexadores SciELO, LILACS, Pubmed, Web of Science e PsycINFO, sendo encontrados 36 estudos internacionais que avaliaram a relação entre coping e sobrecarga dos familiares cuidadores. Os resultados indicaram que os familiares utilizam uma diversidade de estratégias de enfrentamento, mas, em geral, elas não estão associadas a um menor grau de sobrecarga. As estratégias de evitação e de resignação estão claramente associadas a um maior grau de sobrecarga, devendo, portanto, ser evitadas.

Psychiatric deinstitutionalization has resulted in greater responsibility for family members in the informal care of patients, which may result in high degree of burden for these caregivers. Burden may be reduced by the utilization of effective coping strategies, according to the theoretical model of burden. A systematic search was conducted in SciELO, LILACS, Pubmed, Web of Science and PsycINFO databases, where were found 36 international studies evaluating the relationship between coping and burden of family caregivers. Results indicate that family members use several types of coping strategies, but these strategies in general are not associated with a lower degree of burden. Two strategies, avoidance and resignation, were clearly associated with a higher level of burden and should, therefore, be avoided.

Sobrecarga de familiares cuidadores em relação ao diagnóstico de pacientes psiquiátricos / Family caregivers? burden as a function of psychiatric patients diagnostics

Objetivo Comparar os graus das sobrecargas objetiva e subjetiva sentidas por familiares cuidadores de pacientes com esquizofrenia e por familiares cuidadores de pacientes com depressão maior, bem como os fatores associados e as dimensões mais afetadas em cada grupo. Métodos Participaram desta pesquisa 50 cuidadores de pacientes com esquizofrenia e 50 cuidadores de pacientes com depressão maior. Esses familiares participaram de uma entrevista estruturada, na qual foram aplicados dois instrumentos: a escala de sobrecarga FBIS-BR e um questionário. Resultados Os resultados indicaram que os dois grupos apresentavam diferenças significativas quanto ao grau de sobrecarga, na análise detalhada dos itens da escala. Os familiares cuidadores de pacientes com esquizofrenia apresentaram sobrecarga objetiva significativamente mais elevada ao assistir o paciente na tomada de medicamentos e na administração do dinheiro e apresentaram maior sentimento de peso financeiro resultante do papel de cuidador. Os cuidadores de pacientes com depressão maior apresentaram maior frequência de supervisão de comportamentos autoagressivos, mais preocupação com a vida social dos pacientes e maior sentimento de incômodo nas tarefas de assistência na vida cotidiana. Não foram encontrados dados significativos referentes aos escores globais da escala de sobrecarga. Conclusão As diferenças encontradas nesta pesquisa apontam para a necessidade de os serviços de saúde mental planejarem intervenções específicas para cada grupo de cuidadores. .

Objective This study aimed to compare the degree of objective and subjective burden felt by family caregivers of patients with schizophrenia and by family caregivers of patients with major depression, as well as the associated factors and life dimensions most affected in each group. Methods Participated in this study 50 family caregivers of patients with schizophrenia and 50 family caregivers of patients with major depression. These subjects participated in a structured interview for the application of the FBIS-BR burden scale and a sociodemographic and clinical questionnaire. Results The results indicated significant differences in the degree of burden of the two family caregivers groups, in the analysis of specific scale items. The family caregivers of patients with schizophrenia showed significantly higher objective burden in the subscale “Assistance in Everyday Life”, particularly in the tasks related to medication administration and financial management, and they also had more feeling of financial burden. Caregivers of patients with major depression had a higher frequency of self-injurious behaviors supervision, more concern with the social life of patients and a greater feeling of discomfort in the service tasks in everyday life. No difference was observed between groups regarding the scale global scores. Conclusion The differences found in this study pointed out the need for mental health services to plan specific interventions for each group of family caregivers. .